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Category Archive: Uncategorized

Aug 21

More changes

God, it’s really happening. In less than a week, I’ll have all three kids in school, again, for the first time in four years. SO MANY EMOTIONS happening right now, all over the place, and I’m feeling overwhelmed and slightly inadequate and mostly afraid of it all crashing down again. Sam did great for the …

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Aug 16


Okay, I admit it. I’m straight up terrified of Monday. Monday, Sam starts back to school. For the first time in four years, only now he’s going back to a new school, with people I don’t know and trust even less. With a zillion other kids – and with the added problem of being LEGALLY …

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Jul 25

Summer Updates

So much happening these days…. Jessie has been tentatively diagnosed with something called POTS (Postural Orthostatic Tachycardia Syndrome ). She’s started getting headaches every day, some really bad, some not so bad, but accompanied with dizziness and lightheadedness. She’s only passed out once, but once is enough, really. At least, as far as I’m concerned. She’s …

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Jul 01

It’s an odd sort of summer

I still feel like it hasn’t really started yet. We had Glennys down for the first week, and then… I’m drawing a total blank on what we did the following week. Marc is off all this week, and it still feels like we’re existing in this odd holding pattern. Waiting. I know that the end …

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Jun 13

Taking it for granted

I wonder if I’ll ever reach that point again. When I have three kids, all in school, all proceeding normally. Because today, for the first time in forever, I picked all three kids up from school and stopped for cocoa and the entire drive home, with everyone giggling and arguing and discussing summer plans… it …

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May 08

The Missing Three Years

I know I shouldn’t feel this way. I know I should be grateful I still have a Sammy. I should be focusing on the fact that he’s survived the past three years, gone through the trauma and the loss and emerged stronger and more emotionally able to handle whatever life throws his way. I know …

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May 07

Repost from a few years ago

I wrote this originally when Sam was in first grade, or second. Before third grade, when everything went downhill, and school became terrifying and impossible for my poor boy. Sam has started back at school, on a very limited schedule, and again, I have to thank the teachers, staff and administration who make it possible. …

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Apr 26

Back to School – or the post I was never planning to write

Sam just wrapped up his first week back at school (with a day off, as his teacher is out sick today). But for four days this week, he got up, got dressed and went in for ELA, math and braille. It’s a small group classroom (or resource room, or special ed room, not sure what …

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Apr 11

Thoughts on a Three Year Anniversary

Marc told me once that he thought losing a child is the worst thing. Losing a child slowly is the second, and watching your child suffer in pain is the third worst thing that any parent can go through. Sam wasn’t ever near death, but the pain and the trauma is something that I don’t …

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Mar 31

How I Am Surviving Sam’s IEP Process

Quick disclaimer – I don’t recommend this path. It’s counter to everything I think the IEP process should be, and it’s exhausting on every level. But it does work – because while I’m not done, I’m slowly getting everything we wanted for Sam for next year. Okay – here it is. I just cry. The …

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