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Monthly Archive: November 2016

Nov 29

Confusion

And frustration. That’s where I am right now.  I’m trying to wade thru the paperwork and process of getting Sam the services he needs while still homeschooling – and it’s a hot mess.  Nobody knows who I need to talk to, nobody wants to say that they’ll step up and help me figure it out.  …

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Nov 22

Sunrise

I woke up this morning a little before five.  In my dream, Jessie slammed a car into another one, and totalled both of them.  Nobody was hurt, in my dream, but she had done it accidentally because she was mad, and I was busy taking care of Julie and couldn’t stop her.  Then Marc was …

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Nov 22

Thanksgiving

We’re prepping a little differently this year.  In the past, we’ve split up on Thanksgiving.   Marc stays home with Sam and sometimes Julie, and Jessie and I spend Wednesday night and most of Thursday at my mother’s house.  And in years past, that’s been okay.  Sometimes Marc, Sam and Julie would come down to my …

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Nov 07

I’ve never had a case like this

That’s the theme for Sam, apparently.  And honestly, hearing that about your child is not really something that bodes well for me. Nine year old boys don’t get pseudo-tumors from a bike accident.  Psuedo tumors don’t NOT get better when on Diamox.  Diamox doesn’t impact taste buds to the point where they just don’t work …

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Nov 02

Don’t discount what you’ve been through

I had a session yesterday with Sam’s therapist, just a catch-up sort of thing – because in so many ways, he’s improving, but there are still issues that we grapple with.  The bigger issues now seem to be focused on dealing with negativity – he’s really uncomfortable with sitting with and handling negative emotions.  He …

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